Navigating Relationships with POTS: Communicating Your Needs
Managing relationships with loved ones can be tricky, especially if you have a chronic illness like Postural Orthostatic Tachycardia Syndrome (POTS). This condition affects your blood flow and can cause fatigue, dizziness, and difficulty with standing or walking for prolonged periods. It can be challenging to communicate your needs to your loved ones, especially if they don't understand the severity of your symptoms. In this blog post, we'll explore some tips on how to navigate relationships with POTS and how to communicate your needs with your partner and other loved ones in your life.
Educate your family about POTS
The first step to navigate relationships with POTS is educating the people in your life about your condition. Explain to them the causes, symptoms, and treatment options of POTS. Give them some resources to read about this condition so that they can understand what you're going through. It's essential to have a support system who understands your condition and knows how to best help you. My husband has done a great job at taking the time to understand my condition, which enables him to help me hold my boundaries with other people in our life.
Communicate your needs
POTS can be unpredictable, and it's essential to communicate your needs. Let them know when you're feeling fatigued or dizzy and need to rest. If you can't stand for an extended period, ask for a chair or a place to sit. Be clear and concise about what you need, so they can help you. Remember, nobody can read your mind, so it's okay to ask for help.
Plan activities ahead of time
When you have POTS, it's best to plan your activities ahead of time so your support system can be prepared. If you're going out, suggest a place with plenty of seating or an activity that doesn't require standing for too long. Alternatively, plan your activities for the times of day where your symptoms are less severe. Personally, I seem to do best in the morning and those end up being our most productive hours.
Be honest about your feelings
Having POTS can be frustrating and emotionally draining. It's essential to be honest with people in your life about how you're feeling emotionally. Let them know when you're feeling anxious or frustrated, and you need some support. Remember, your loved ones are there to support you, and being honest about your feelings can help ease your emotional burden.
Practice self-care
Lastly, it's vital to practice self-care when navigating relationships with POTS. Take time for yourself and prioritize your health. Communicate your needs with your family but also be aware of your limitations. Don't push yourself too hard, and be kind to yourself. You'll be a better partner and a better person if you take care of yourself first.
Living with POTS can be challenging, but having a support system can make the journey a little easier. Communicating your needs and educating your loved ones about POTS can help them better understand your condition and support you.
Have other tips I missed? Drop them in the comments below!
